Miami Valley Spina Bifida Organization (MVSBO) Newsletter
You can read the newsletter below, access the PDF version, or send future newsletters straight to your inbox by entering your email address in the 'Connect with us' box on the right side of this page.
Dayton Dragons Game
Meet us in the Café Deck. Tickets and Snacks will be provided by MVSBO. Parking (approx. $10) and any additional food is your responsibility.
When you RSVP, please include the name and age of each family member attending and an address at which you can receive your tickets.
Please RSVP by Wednesday, May 30th by email: firstname.lastname@example.org or by phone: (937) 236-1122 It is recommended to arrive early for decent parking and to get settled into the suite before the game!
When: Sunday, June 10th, 2018
Save the Date!
Come out for a fun day of familyfriendly activities and ice cream!
18th Annual Walk & Roll
Join us at the Spina Bifida Coalition of Cincinnati’s Walk & Roll. This will be a great opportunity to support the SB community and meet new friends!
Recap: Bowling Party
It was great to have so many folks join us for the bowling party. It was a full house! The kids clearly enjoyed the bowling, and it was a great opportunity to reconnect with old friends and welcome new SB families to the Dayton area. If you couldn’t join us, we hope you will be able to come to our next outing in June and join in the fun!
Call for Board Members
It’s the time of year to consider serving on the MVSBO Board. In addition to serving the SB community, this is a great opportunity to meet new people and make great friends!
Several new Board Members are needed to fill positions being vacated this year. We are in search of a new Secretary and at least 2 Trustees. If you are willing to help keep our Organization running smoothly, please contact our President, Jeremy Evans, at 937-409-1535.
Support MVSBO while you shop!
The Miami Valley Spina Bifida Organization has recently been added to the list of charities that can benefit from the shopping you already do! Please take a moment to select our organization as your charity of choice and share this info with everyone you know.
Welcome to AmazonSmile, where Amazon donates 0.5% of the price of eligible smile.amazon.com purchases to the charities selected by customers. When customers sign up for AmazonSmile, they’re asked to select one of over a million charities to support. When customers click on your unique link, they skip this charity selection process. Instead, they're taken to smile.amazon.com and are automatically asked if they want to support Miami Valley Spina Bifida Organization.
Your unique charity
Kroger Community Rewards:
Simply register online at KrogerCommunityRewards.com. No Kroger Plus card? They are available at the customer service desk at any Kroger!
Click on Sign In/Register New online customers must create a Kroger Rewards Account by entering zip code, clicking on favorite store, entering your email address creating a password, and agreeing to the terms and conditions.
You will then get a message to check your email inbox and click on the link within the body of the email.
Click on My Account and use your email address and password to proceed to the next step.
Click on Edit Kroger Community Rewards information and input your Kroger Plus card number.
Update or confirm your information.
Enter Miami Valley Spina Bifida Org in the search and select from list. Click confirm.
REMEMBER, purchases will not count for MVSBO until a card is registered!
Do you use your phone number at the register? Call 800-576-4377, select option 3 to get your Kroger Plus card number.
Members must swipe their registered Kroger Plus card or use the phone number that is related to their registered Kroger Plus card when shopping for each purchase to count.
There is a whole series of webinars featuring topics specific to those living with SB available through the following website:
Equipment Assistance Request Form
The Purpose of this program is to help offset expenses incurred by individuals with Spina Bifida or their families. (See application form below.)
- Participation in fundraising events is encouraged
- Applications are available from the address listed below or by calling (937)236-1122
- The fund covers only expenses for Spina Bifida that have not been paid for out of any state aid, insurance or other funding source
- Completed applications must be accompanied by copies of itemized bills or prescriptions, and insurance allowance or denial statements
- All information is considered confidential
- Grants are subject to the availabilty of funds
Items Covered (Examples)
- Orthopedic equipment (crutches, brace, walkers, shoes, wheelchairs)
- Urinary and bowel control supplies (gloves, lubricant, catheters)
- Home & vehicle modifications
- Other medical expenses not covered by insurance or state agencies
- Adapted recreational equipment
- Other Needed services
If you need assistance with obtaining Spina Bifida equipment, please download the Equipment Assistance Request Form.
You can access previous issues of the Miami Valley Spina Bifida Newsletter here:
- Winter 2018
- Fall 2017
- Summer 2017
- February 2017
- Fall 2016
- Summer 2016
- April 2016
- January-February 2016
- Fall 2015
- August 2015
- May-June 2015 - Issue 23
- January 2015 - Issue 22
- November 2014 - Issue 21
- August 2014 - Issue 20
- May/June 2014 - Issue 19